WANTED: RECURRENT MISCARRIAGE SPECIALISTIncreasingly desperate married white female seeks obstetrical wizard who specializes in recurrent miscarriage. Willing to try conventional as well as unconventional approaches to try to determine causes of the demise of multiple first trimester pregnancies, as well as to find solutions to prevent a sixth such loss. Willing to invest a significant amount of her dwindling savings (although insurance would be nice!)for right match. I offer well-reasoned questions, excellent (if increasingly caustic) SOH, and impressive patient compliance. Interested parties please contact at firstname.lastname@example.org.
I first heard the term "wizard" used in a medical context by my oncologist several years ago when he and a team of surgeons and a big ole academic tumor board thought my cancer had recurred. Which would have been REALLY bad news, potentially deadly news. My oncologist turned to me and in his kind but honest way said, "Sometimes, Mo, you're at the point where you need a wizard, and I think that time is now." He said he was not qualified to provide the advanced care I would need and he proceeded to give me two names: one at Memorial Sloan-Kettering in NYC, and one at Stanford University in Palo Alto, California.
Through an amazing turn of events, two weeks later it was determined that I HADN'T relapsed and DIDN'T have to have a bone marrow transplant. Which left me enormously grateful, not to mention thoroughly shaken up and feeling as though I'd had a brush with the great beyond.
But it introduced the idea of "wizards." And I think that's where we are at with this miscarriage situation. I just can't keep doing this. I can't keep losing baby after baby. I need to find out how to stop this from happening over and over again (Two losses were chromosomal, but we're not sure about the rest). It is not good enough anymore to hear that it is bad luck. It is not good enough anymore to hear that my risk of miscarriage is similar to any other 37 year old (which is what the genetic counselor told us the day before we found out our latest baby had died). I don't believe it. And I can't just keep hoping something different is going to happen. I can't. We've had the standard miscarriage work up (all negative - no clotting issues, no nothing) and I've been seeing one of the top REs in the country.
I just keep thinking there must be an answer out there. And so I turn to you all, and your enormous base of knowledge. Does anybody know Who's Who in the world of recurrent miscarriage specialists? I'm actively seeking any and all advice. We'd like to keep it to the East Coast/Mid-Atlantic region, but if you know of someone further afield, I'd be interested in hearing about them too. Anybody who would take a long and detailed look at our situation, be willing to think outside the box.
A wizard, people. That's what we really, really need. Do you know one?