Yesterday afternoon, I had IVIG infusion #5. I had really hoped that IVIG infusion #4, sucky as it was, would be the last, but my reproductive immunologist's blood work showed a spike in my TH1:TH2 levels...not just a little jump, but a good sized one, so I reluctantly opted for another treatment. I did refuse, after how dreadful the last infusion was, to do it in the office again. He must have heard in advance from the nurse that there was no way I would agree to that again, so he relented and let me have the treatment at home with a private nurse (I have to pay for her time if it's in the office too, so this was not an added expense).
If done at the usual speed, it's a four hour infusion. I usually feel "okayish" for the first half hour or so and then get clammy and cold and pale, then get a low-grade fever, which starts to lower by the time the infusion completes. They dose me up with two tylenol and two benadryl ahead of time, so I'm a bit groggy.
This time, I actually felt pretty good at first and opted to sit up on the couch and read for a bit...then all the sudden, I thought I should probably lie down. By the time the nurse got me into bed with the IV hung up, I was shaking violently. I couldn't tell if I was having chills or just tremors of some sort. It was a bit wild. I also felt very short of breath and was kind of panting. She wanted to turn off the infusion, and I wanted her to keep going (so we could finish and she could leave). We ended up turning it off until the shaking reduced some and then continuing. I spiked the usual 101 degree fever, but then was able to sleep through a couple of hours of it, which helped a lot.
So one more infusion behind me. But yuck!
The whole time I was shaking and feverish, I was worried about Ms. Magpie. If *I* was having this reaction, how was she doing? Was this hurting her in any way? She was very quiet last night and into this morning, which had me worried, but by mid-day today she was her usual kicky and squirmy self (much to my relief).
My reproductive immunologist is making noises about me continuing this treatment until I reach 34 weeks.
God, I hope not. Of course I would do anything to make this pregnancy a success. I just wish I believed in this treatment a bit more (at all?).
Click here to subscribe